Membership / Volunteer

Become a Member

WHY YOU ARE NEEDED

Your support helps SCTPN to continue its mission and increase its capacity to raise the public profile of SCD. SCTPN makes an effort to demonstrate to people living with sickle cell, thalassemia and other inherited blood disorders that they can live full, productive lives.

MISSION

SCTPN is committed to improving the quality of life for children and adults diagnosed with inherited blood disorders and their families to reduce the negative emotional, mental, social, educational, and economic impact of these chronic conditions.

ADVOCACY & SUPPORT

Our advocates and certified Community Health Workers (CHW), Public Outreach and Educational Services (POES) at schools, places of worship and business. Direct family support includes non-medical Care Coordination, social support and referrals to needed services.

SCTPN makes an effort to demonstrate to people living with sickle cell, thalassemia and other inherited blood disorders that they can live full, healthy, and productive lives.

MEMBERSHIP

Share your passion, professional expertise, and creativity with the organization as a volunteer member. The gift of your time directly benefits individuals and families living with inherited blood disorders. Click here to complete and submit a membership application.

As a member, participating on a committee will support the organization’s mission:

Administrative Support Membership

General administrative tasks Recruitment

Language interpretation Coordination of Resources

Fundraising Marketing Communications

Grants Development Marketing & Public Relations
Sponsorship & Partnerships Development & Distribution of Content
Coordinate with Events Committee Media Training and Appearances

Events Subcommittee Outreach & Education

Event Planning & Coordination Facilitate Presentations

Annual and Special Events Community Engagement

Virtual and Hybrid Events Legislative and Political Advocacy

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Become a Executive Director

SCTPN is now seeing candidate to fill vacancies on its Board of Directors. Donnette Carroll, Co-Founder and President, and Geoffrey Stephen, Vice President are both retiring. New leaders are needed to succeed as directors to deliver the deliver the organization’s mission objectives.

Submit your resume or curriculum vitae to info@sctpn.net. Place in the subject line “Executive Candidate”. All candidates will be invited to attend an Open House in late August. The election will take place in October.

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Become a Board Advisor

THE BOARD OF ADVISORS

Support SCTPN’s mission as a member of the Advisory Board. The board meets 4 to 6 times annually to support the sustainable growth of the organization’s programs and services, and to plan activities.

LEADING SUSTAINABILITY & GROWTH

SCTPN is celebrating its 32^nd year in service to the sickle cell communities of New York State and abroad. As long as there are children being born into a life a pain and debility, the organization must continue to exist. SCTPN is expanding its capacity to serve affected families and our medical professional partners throughout New York State.

As a member of the Board of Advisors, you will participate in developing and implementing strategies to achieve mission objectives and goals. You will be on the front line of building public awareness of sickle cell disease and SCTPN’s brand. The work of the advisory board is organized through the following Committees:

Administrative Marketing & Public Relations

Setting Annual Objectives and Goals Marketing Promotions & Public Relations

Building & Strengthening Community Relations Media Training

Review and Approval of Annual Reporting Public Appearances and Interviews

Make Recommendations for Resolving Issues

Advocacy & Education Public Outreach & Policy

Advocate for SCD on City, State, Federal Level Develop Educational Materials

Advocate for Quality Healthcare Facilitate Presentations

Participate in Policy Discussions for Change Policy Research and Advocacy

Strategic Development (Fundraising) Quality Assurance

Manage Board Giving Evaluate and Report on Operations

Grants and Sponsorship Assess Compliance with State and Assist with Annual Fundraisers
Federal Regulations

Sustainable Financial Planning Review and Approve Quarterly Plans
Write Quarterly Compliance Reports

Ad Hoc Committees Nomination

Search for Board Candidates

Coordinate Open House Events

Coordinate Elections

Start Application

Website Privacy Policy for The Sickle Cell Thalassemia Patients Network

The Sickle Cell Thalassemia Patients Network is committed to maintaining the privacy of our website visitors and donors and to maintain the confidentiality of all personal Information.

The personal information you provide to us is solely utilized to receive and process your donation or to process any information requests you may have. Donor anonymity is always respected.

The Sickle Cell Thalassemia Patients Network does not sell, rent, or trade consumer mailing lists. *
Your personal information is kept in a private database located in our office.
Upon request, we will allow you full access to your information and we will maintain its accuracy according to your instructions.
The Sickle Cell Thalassemia Patients Network keeps donors informed about how donations are used and how crucial these contributions are to ensuring the ongoing success of our programs.
In addition to sending out direct mailings to encourage donor support, we also execute several major fundraising events each year to accomplish our goals.
Most Sickle Cell Thalassemia Patients Network supporters wish to receive all of our

Mailings and newsletters. However, if you no longer wish to receive these mailings, you may contact us with your request to opt-out at any time.
Comments or questions regarding The Sickle Cell Thalassemia Patients Network’s Privacy

Policy should be directed to:
Email: gstephen@sctpn.net
Phone: (718) 533-8485
Mail: The Sickle Cell Thalassemia Patients Network, Inc.

1139 St. Johns Place, Brooklyn NY 11213-2617
*Unless required by law.