Scholarship Awards

Young adults with SCD who are high school seniors or current undergraduates matriculated at an accredited college are qualified to apply for the College Scholarship Application.

Required Qualifications | Application Form

Public Outreach & Education Services (POES)

Sickle cell disease has become invisible as a serious public health issue after the 1970s.

Through POES, SCTPN works towards its objective to increase public awareness of sickle cell disease and other inherited blood disorders by hosting free educational forums at elementary schools, colleges, places of worship, employment, and other public venues.

To learn how you can schedule a Community Health Worker (CHW) for your event contact our Project Coordinator Mark Goodwin at mark.goodwin@sctpn.net, or Sarai Santiago at sarai.santiago@sctpn.net.

Other POES Activities:

• Education and advocacy outreach to medical institutions and universities teaching medical sciences to bring awareness and a better understanding of hemoglobinopathies from the consumer’s perspective.
• Offers education and training in Spanish and English.
• Provide advocacy and interventions for individuals and families within the home, and in the community, at school, work, and in the hospital.
• Provides referrals to qualified physicians, health care facilities, and other resources.
• Focus outreach to the growing immigrant population in NYS.

Starting in the summer of 2019, SCTPN will offer a variety of training opportunities to members and volunteers interested in supporting the Network’s mission to improve the quality of life for children and adults living with sickle cell disease and other inherited disorders.

Adolescent Transition Program

SCTPN is partnering with Montefiore Medical Center, Bronx, NY, to develop and improve the Transition process from pediatric to adult sickle cell care.  With support from PCORI, we are utilizing the curriculum from www.gottransition.org

We are developing a Community Advisory Board (CAB) to include consumers on both pediatric (under 21) and young adults and parents/caregivers to review the Transition policy and process. We hope to develop educational materials appropriate for age and health literacy level.  We will continue to offer support to young adults for two years after transfer of care.

Based on this project, SCTPN is building the capacity to offer technical expertise to other hospital partners in the future.

For more information contact Mark Goodwin, LCSW, Project Coordinator mark.goodwin@sctpn.net.

If you have or know of a public space that would be suitable to accommodate approximately 20 students and 4 tutors (per site), please contact us by email at poes@sctpn.net.

Care Coordination Program

The Care Coordination Program is funded by a HRSA (Human Resource Services Administration)  grant Administered by SCDAA to assist Community-Based Organizations CBO) across the country with providing outreach services to individuals living with SCD, and their families.  SCTPN can assist people with finding a qualified physician and a Medical Home.

Project Director, Mark Goodwin, Community Health Workers, Esme Hilman, Doris Polanco, Sabrina J. Lewis, Desiree Chung, and Ana Ozuna,  iwill help you identify service needs and connect you and your family with the proper health providers and social service supports. Whether you are in need of a need a dentist, ophthalmologist, orthopedic surgeon,a new primary doctor or hematologist.  Call (347) 533-8485 to connect with a Community Health Worker.

For assistance contact Mark Goodwin, LCSW, Project Coordinator mark.goodwin@sctpn.net or call (347)    533-8485.