Academic Excellence & Mentorship Program

Provides tutoring services for students grades 3-12 through collaboration/partnerships with other CBOs (Beacon Programs)

Mentors adolescent and young adults – affected individuals and their sibling(s)

Undergraduate and graduate scholarship program (Learn More)

YES! I would like to donate to the Scholarship Program.

Public Outreach & Education

Sickle cell disease has become invisible in the public health arena. The Sickle Cell/Thalassemia Patients Network in partnership with Comprehensive Sickle Cell Treatment Centers and other community-Based Organizations work diligently to disseminate important information about genetic disorders, who they affect, how whole communities are affected and what we all can do to improve the quality of life for those affected by inherited hemoglobin disorders.

Key Issues to be Addressed:

• Increasing public knowledge by hosting fee public forums
• Increase outreach effort in medical institutions providing comprehensive care
• Provision of referrals to qualified physicians and health care facilities
• Provide advocacy and interventions for individuals and families in school, at work, in the hospital, within the family and in the community
• Increase community-based partnerships to offer a wider range of services throughout a large and growing population

Starting in February of 2008, SCTPN will offer a variety of training opportunities to members and volunteers interested in supporting the Network’s mission to serve and improve the quality of life for children, adults and families living with sickle cell disease and other hemoglobin disorders.

POSSIBLE Youth Services

With Faith, Determination and Hard Work…All Things Are POSSIBLE!

SCTPN cares for and believes in children and young adults living with sickle cell disease, thalassemia, and other hemoglobin disorders. The following programs and services have been developed to diminish the negative impact of living with a chronic condition in order to live healthy, productive lives.

Academic Assistance

SCTPN in partnership with several other community organizations are providing access to beacon programs offering tutoring, vocational training, extracurricular activities for students grades 1-12.

If you are having difficulty keeping up, or are falling behind in school, click here to submit an application for tutorial assistance.

The Annual Scholastic Achievement and Scholarship Award ceremony recognizes the academic achievements of students grades 1-12. The ceremony features an essay contest with cash awards, and college scholarships. In the spring of 2005, the Fleming-Belanger family and SCTPN launched the Lori N. Fleming Belanger Graduate Scholarship Fund. This scholarship was created in memory of former Advisory Board member Lori N. Fleming Belanger to honor her life and encourage other adult survivors to strive for excellence.

Youth Mentorship

Everyone benefits from having someone to talk with and learn from. Mentors provide direction and assist their mentees to achieve their stated goals. POSSIBLE Youth program serves as a conduit for young people living with sickle cell, thalassemia, and other hemoglobin disorders to gain better access to available resources. Young people are paired with professionals from their field of interest or are encouraged to explore all Possibilities.

If you are not sure of what you like, or what you want to do, try different things!

Services

Referral service for qualified physicians, support groups and other needed services (link to the resource center)

Advocacy and mediation for individuals and families with health care professionals, employers, educational institutions and legislators

Emergency financial support for individuals and families when all other resources are exhausted

Email us for more information support@sctpn.org