Donnette Carroll, Co-Founder & President
Practicing Social Unity
Since the 1990s, the primary focus of the Sickle Cell Thalassemia Patients Network (SCTPN) has been to advocate for the sickle cell community while raising awareness about the disease, because of the extreme need to fill the void for information and services available to affected families. Today, we all have access to up-to-date information on sickle cell disease (SCD).
In the midst of the COVID-19 viral pandemic, and the need for physical distancing, we are working not to lose touch/connection with the families we serve or the medical professionals we collaborate with.
We recognize that the community needs our support programs and services now more than ever.
SCTPN will continue to be a resource for individuals and families living with sickle cell disease. We are working to establish the capability to bring our support services and our 2020 event calendar to you virtually. The organization’s mission to diminish the physical, emotional, psychological, and economic impact SCD has on our community is unwavering. Through public education, advocacy programs, and referral to needed resources, you can rely on SCTPN’s commitment to maintaining a strong presence throughout New York State for the duration of this public health crisis.
Respectfully,
Donnette Carroll