Event Calendar
Community Connections Virtual Support Interactive
Every second Saturday monthly, at 11:30 am on Zoom, and streaming live on Facebook @SCThalPatientsNetwork. Learn about all things SCD/Thal, how to be an Assertive Advocate, how to navigate the healthcare system, clinical trials, and connect with people globally.
26th Annual SCTPNWalk for Education & Awareness
Save the Date Saturday, September 21, 2024, 9:00 AM to 2:00 PM to join SCTPN and WSCO in Central Park for a day of advocacy, education, music, dancing, and raising funds to support services for the SCD Community!
Registration will open on July 12, 2024
You can register to walk alone or create a team. Always remember to set a fundraising goal that will help our organization to achieve the overall goal of raising $60,000 this year.
World Sickle Cell Day Therapeutics Conference
June 19-21 (Juneteenth) – Shining the Light on the State of Sickle Cell Disease worldwide. Learn about the health, social, economic, and political impacts of SCD presented by advocates, providers, and industry partners. Join on Whova.com.
Have Friendly Competitions
Compete with another team or teams to see who reaches their goal first. Get accolades and win prizes. Invite your family, friends, neighbors, co-workers, and congregation to join you in supporting the missions of the Sickle Cell/Thalassemia Patients Networks organizations throughout New York State, the Virgin Islands, Central America, and Africa.
Together, we can work to improve the quality of life for people living with sickle cell disease and thalassemia.