by sctpn-new | Oct 20, 2018 | Uncategorized
The Community Educational Forum on Sickle Cell Disease will be held in the Edison O. Jackson Auditorium, Medgar Evers College, Saturday, October 27, 2018 The Sickle Cell Thalassemia Patients Network (SCTPN) and CUNY/Medgar Evers College are hosting a Community...
by sctpn-new | Oct 20, 2018 | Uncategorized
Got to tell you my heart broke just a little. There is such disconnect between many young adults 22 to 33-years of age. At least the ones that we’ve been speaking to lately. I take for granted the relationship that my family has with its children. We encourage and...
by sctpn-new | Sep 19, 2018 | Uncategorized
Calling on the Sickle Cell Community and its Supporters. We need your help to ensure the passage of the NYS Sickle Cell Treatment Act of 2018. Please take a moment out of your day to call your Assembly and Senate representative to ask them to support this legislation...
by sctpn-new | Sep 14, 2018 | Uncategorized
September is National Sickle Cell Awareness Month These medical terms are commonly used in association with Sickle Cell Disease. Knowing and understanding these terms will aid you in having an informed conversation with your physician or allied healthcare...
by sctpn-new | Sep 12, 2018 | Uncategorized
Working Together to Advance the Cause of Sickle Cell Disease Fallen Angels Sickle Cell Foundation at Peck’s Pond, Hawthorn, NY Calling all Community-based Sickle Cell Disease service organizations! The need has long existed for organizations to become better connected...
by sctpn-new | Sep 10, 2018 | Uncategorized
Celebrate Life Living With Sickle Cell Disease Medu Neter Some writings depict Sickle Cell Anemia (SCA) that are more than 2000 years old. In 1910, medical intern Ernest E. Irons, and attending physician Dr. John Herrick gave a name to this ancient genetic disorder...
