by sctpn-new | Jul 27, 2020 | Advocacy & Education, Health Education
A question was posted on Facebook asking “How have you dealt with the lack of information regarding your condition?” That question has spurred this response. There are many reasons why doctors, nurses, and social workers do not pass on vital information to you during...
by sctpn-new | Apr 18, 2020 | Advocacy & Education, POES Government 101 Education
The New York State Sickle Cell Disease Partnership (NYSSCDP) and the New York Coalition for Bleeding Disorders (NYCBD) were scheduled to be in Albany Monday, March 16, at the State Legislative Office Building (LOB). We planned tabling activities and meeting with...
