by sctpn-new | May 23, 2022 | Advocacy & Education, Community Support, Leadership
A new executive team officially began its role on October 4, 2021. The Sickle Cell Thalassemia Patient’s Network (SCTPN) welcomes Teresa Ginger Davis, President; Richelet “Rich” Jean, Vice President; and Tashiika McClain, Treasurer. Jocelle Marius is the Assistant...
by sctpn-new | Feb 2, 2022 | Advocacy & Education, Health Education, Research Trials
2022 LUNCH & LEARN Clinical Trials Presentations begins this month with a presentation by Irene Okeke, PharmD, RPh, Senior Science Medical Liaison for Sickle Cell Disease with forma Therapeutics. Irene Okeke is a Doctor of Pharmacy by training and graduated...
by sctpn-new | Aug 23, 2021 | Advocacy & Education
By: UNTOLD Story Media Cryptocurrencies and Artificial Intelligence for non-profit Organizations Non-profit organizations are increasingly turning to cryptocurrency as a new source of income, due to the rising prices of Bitcoin and other cryptocurrencies. But, in...
by sctpn-new | Jan 6, 2021 | Advocacy & Education, Community Support
2020 was a challenging year indeed; one where stumbling blocks were turned into stepping stones. One where our true character was brought to the fore, and our tenacity was put to the test. We have lost many family and friends, much pain was experienced, and hope...
by sctpn-new | Aug 31, 2020 | Advocacy & Education, Health Education
A Minute With Marqus Marqus left us many memories – in the form of short stories, journal entries and sketches – that we plan to share over time. The goal of the Minute With Marqus has always bee to educate through the voice of a sike cell warrior. This...
by sctpn-new | Jul 27, 2020 | Advocacy & Education, Health Education
A question was posted on Facebook asking “How have you dealt with the lack of information regarding your condition?” That question has spurred this response. There are many reasons why doctors, nurses, and social workers do not pass on vital information to you during...
