Happy New Day

SCTPN Community Health Worker Sabrina J. Lewis Shares Her Story About Advocacy and Care Coordination in the SCD Community As a Community Health Worker with the Sickle Cell Thalassemia Patient Network, various experiences have opened my eyes to truths of what families...

SUPPORT TEAM CELEBRATE LIFE

September is Sickle Cell Awareness Month Celebrate Life is an affirmation to acknowledge and commemorate those living with and suffering from painful and debilitating inherited blood disorders like Thalssemia and Sickle Cell Disease (SCD). The SickleCell Thalassemia...
Millennials We Need to Talk!

Millennials We Need to Talk!

Got to tell you my heart broke just a little. There is such disconnect between many young adults 22 to 33-years of age. At least the ones that we’ve been speaking to lately. I take for granted the relationship that my family has with its children. We encourage and...

FYI: Terms You Need To Know

September is National Sickle Cell Awareness Month These medical terms are commonly used in association with Sickle Cell Disease. Knowing and understanding these terms will aid you in having an informed conversation with your physician or allied healthcare...

Solidarity Advocacy

Working Together to Advance the Cause of Sickle Cell Disease Fallen Angels Sickle Cell Foundation at Peck’s Pond, Hawthorn, NY Calling all Community-based Sickle Cell Disease service organizations! The need has long existed for organizations to become better connected...
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