by Ginger Davis | Apr 18, 2020 | Advocacy & Education, POES Government 101 Education
The New York State Sickle Cell Disease Partnership (NYSSCDP) and the New York Coalition for Bleeding Disorders (NYCBD) were scheduled to be in Albany Monday, March 16, at the State Legislative Office Building (LOB). We planned tabling activities and meeting with...
by Ginger Davis | Apr 17, 2020 | Uncategorized
Practicing Social Unity Since the 1990s, the primary focus of the Sickle Cell Thalassemia Patients Network (SCTPN) has been to advocate for the sickle cell community while raising awareness about the disease, because of the extreme need to fill the void for...
by Ginger Davis | Sep 11, 2019 | Uncategorized
SCTPN Community Health Worker Sabrina J. Lewis Shares Her Story About Advocacy and Care Coordination in the SCD Community As a Community Health Worker with the Sickle Cell Thalassemia Patient Network, various experiences have opened my eyes to truths of what families...
by Ginger Davis | Sep 6, 2019 | Uncategorized
In an effort to increase outreach in to the Latin community in northern Manhattan and the Bronx, the Sickle Cell Thalassemia Patients Network (SCTPN hosted its second English/Spanish Sickle Cell 101 Forum, at the Northern Manhattan I C. The forum is part...
by Ginger Davis | Jul 22, 2019 | Uncategorized
September is Sickle Cell Awareness Month Celebrate Life is an affirmation to acknowledge and commemorate those living with and suffering from painful and debilitating inherited blood disorders like Thalssemia and Sickle Cell Disease (SCD). The SickleCell Thalassemia...
by Ginger Davis | Oct 20, 2018 | Uncategorized
The Community Educational Forum on Sickle Cell Disease will be held in the Edison O. Jackson Auditorium, Medgar Evers College, Saturday, October 27, 2018 The Sickle Cell Thalassemia Patients Network (SCTPN) and CUNY/Medgar Evers College are hosting a Community...
by Ginger Davis | Oct 20, 2018 | Uncategorized
Got to tell you my heart broke just a little. There is such disconnect between many young adults 22 to 33-years of age. At least the ones that we’ve been speaking to lately. I take for granted the relationship that my family has with its children. We encourage and...
by Ginger Davis | Sep 19, 2018 | Uncategorized
Calling on the Sickle Cell Community and its Supporters. We need your help to ensure the passage of the NYS Sickle Cell Treatment Act of 2018. Please take a moment out of your day to call your Assembly and Senate representative to ask them to support this legislation...
by Ginger Davis | Sep 14, 2018 | Uncategorized
September is National Sickle Cell Awareness Month These medical terms are commonly used in association with Sickle Cell Disease. Knowing and understanding these terms will aid you in having an informed conversation with your physician or allied healthcare...
by Ginger Davis | Sep 12, 2018 | Uncategorized
Working Together to Advance the Cause of Sickle Cell Disease Fallen Angels Sickle Cell Foundation at Peck’s Pond, Hawthorn, NY Calling all Community-based Sickle Cell Disease service organizations! The need has long existed for organizations to become better connected...