by sctpn-new | Jul 22, 2019 | Uncategorized
September is Sickle Cell Awareness Month Celebrate Life is an affirmation to acknowledge and commemorate those living with and suffering from painful and debilitating inherited blood disorders like Thalssemia and Sickle Cell Disease (SCD). The SickleCell Thalassemia...
by sctpn-new | Oct 20, 2018 | Uncategorized
The Community Educational Forum on Sickle Cell Disease will be held in the Edison O. Jackson Auditorium, Medgar Evers College, Saturday, October 27, 2018 The Sickle Cell Thalassemia Patients Network (SCTPN) and CUNY/Medgar Evers College are hosting a Community...
by sctpn-new | Oct 20, 2018 | Uncategorized
Got to tell you my heart broke just a little. There is such disconnect between many young adults 22 to 33-years of age. At least the ones that we’ve been speaking to lately. I take for granted the relationship that my family has with its children. We encourage and...
by sctpn-new | Sep 19, 2018 | Uncategorized
Calling on the Sickle Cell Community and its Supporters. We need your help to ensure the passage of the NYS Sickle Cell Treatment Act of 2018. Please take a moment out of your day to call your Assembly and Senate representative to ask them to support this legislation...
by sctpn-new | Sep 14, 2018 | Uncategorized
September is National Sickle Cell Awareness Month These medical terms are commonly used in association with Sickle Cell Disease. Knowing and understanding these terms will aid you in having an informed conversation with your physician or allied healthcare...