by sctpn-new | Jan 6, 2021 | Advocacy & Education, Community Support
2020 was a challenging year indeed; one where stumbling blocks were turned into stepping stones. One where our true character was brought to the fore, and our tenacity was put to the test. We have lost many family and friends, much pain was experienced, and hope...
by sctpn-new | Aug 31, 2020 | Advocacy & Education, Health Education
A Minute With Marqus Marqus left us many memories – in the form of short stories, journal entries and sketches – that we plan to share over time. The goal of the Minute With Marqus has always bee to educate through the voice of a sike cell warrior. This...
by sctpn-new | Jul 29, 2020 | Health Education
These medical terms are commonly used in association with Sickle Cell Disease. Knowing and understanding these terms will aid you in having an informed conversation with your physician or allied healthcare professional. These terms will also help adults living with...
by sctpn-new | Jul 27, 2020 | Advocacy & Education, Health Education
A question was posted on Facebook asking “How have you dealt with the lack of information regarding your condition?” That question has spurred this response. There are many reasons why doctors, nurses, and social workers do not pass on vital information to you during...
by sctpn-new | Jun 29, 2020 | Health Education
By Web MD Fatty liver could be the most common disease you’ve never heard of. At least 1 out of 4 people have it, which is more people than diabetes and arthritis combined. And lots of those who have it may not know they have it — or even what it is. Most...