Project ECHO
SCTPN Project ECHO HUB
Partnering for Better Care: SCTPN and Project ECHO
At SCTPN, we are proud to be a community partner with the University of New Mexico’s renowned Project ECHO, an innovative initiative founded in 2003 by Dr. Sanjeev Arora. Originally designed to address the lack of treatment for Hepatitis C Virus (HCV) patients in New Mexico, Project ECHO has grown into a global movement that empowers healthcare professionals and community organizations to deliver best-practice care to underserved populations.
The Project ECHO model is built on mutual respect, collaboration, and knowledge sharing. Through virtual learning networks called “Hubs,” multidisciplinary teams—including hospitals, family practices, universities, community organizations, and government agencies—come together to exchange expertise, discuss case studies, and improve healthcare delivery. This approach ensures that even the most underserved communities, including those living with sickle cell and thalassemia, gain access to high-quality medical care and resources.
By establishing a Project ECHO Hub, SCTPN will join a global network dedicated to democratizing knowledge and amplifying healthcare capacity. Together, we’ll create opportunities for teaching, learning, and sharing best practices that will transform lives and improve access to critical care for those who need it most.
Join us as we expand our impact and bring innovation to the heart of community healthcare.
We invite pediatric and adult physicians, nurse practitioners, nurses, practitioners of other disciplines, researchers, social scientists, and professionals from other sectors to participate in the development of the SCTPN Project ECHO HUB.
SCTPN Seeks ECHO HUB Partners From:
Education
- College and Universities. No geographic limit.
Hospitals, Health Systems, and Community-Based Practices
- New York Metro Area
- Long Island: Nassau and Suffolk Counties
- Upstate Counties
- Rochester, NY: University of Rochester, and Highland Hospital.
- Albany: Albany Medical Center, and St. Peters Hospital.
- Buffalo: Hospitals TBA.
- Syracuse: NY: Hospitals TBA
Agencies
- NYCDOH, NYSDOH, Wadsworth Laboratory Newborn Screening (NBS). NYC and NYS Health & Hospital Services (NYC/NYSHHS), and NYS Medicare/Medicaid Services.
- Federal Agencies like Office of Minority Health and Health Disparities Prevention (OMH-HDP)
Community
Other community-based organizations, civic, social, fraternal, and professional/trade organizations. Cultural and affinity groups, and houses of worship.
Project ECHO Programs
- Nonprofit Organizational Development and Sustainability
- Writing Winning Grant Proposals
- Budgeting and Strategic Fund Development
- Care Coordination
- Community Health Worker Training
- CBO to Provider Education
- Policy Analysis and Political Advocacy
Join us, as we step through this liminal space into the future iteration of our expanding mission.
Resources
SCTPN provides advocacy and mediation for individuals and families with health care professionals, employers, educational institutions and legislators. Also, referral to qualified physicians, hospitals, support groups and other resources that may be needed.
Email us for more information info@sctpn.net or call (347) 533-8485 or Monday to Friday, 10:00 am to 5:00 pm.
New York Area Resources
- Parent To Parent, Metro New York (www.parenttoparentnys.org)
- New York Association of Black Psychologist (http://www.uh.edu/bapsiuh/id2.html)
- New York City Council (https://council.nyc.gov/)
- New York State Assembly (http://nysassembly.gov)
- New York State Senate (https://www.nysenate.gov/)
- House of Representatives (https://www.govtrack.us/congress/members/NY)
- New York Blooding Disorders Coalition (nysbdcoalition.org/)
- NYC Department of Health – https://www.nyc.gov/site/doh/index.page
- National Library of Medicine (http://www.nlm.nih.gov/portals/public.html)U.
- New York State Minority Health Council (https://www.health.ny.gov/community/minority/council.htm)
- New York Housing Authority – My NYCHA Self-Portal (https://www1.nyc.gov/site/nycha/section-8/self-service.page)
- Human Resource Administration – Access HRA (https://a069-access.nyc.gov/accesshra)
- The New York Blood Center (NYBC) can help ensure that people who are chronically transfused (e.g. sickle cell disease, thalassemia, leukemia, etc.) will have access to blood products precisely matched to each person whenever they need it. For additional information call NYBC at: 800-993-2526 or visit: https://nybloodcenter.org/. To register to donate https://nybc.org/sctpn.
National Resources / National Agencies
- American Disabilities Act (ADA) (https://www.ada.gov/)
- American Society of Gene & Cell Therapies (https://www.asgct.org/)
- Food & Drug Administration (FDA) Office of Minority Health (https://fda.gov/minorityhealth)
- FDA Statement – Center for Biologics Evaluation and Research (CBER) (https://fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm629493.htm)
- NIH Office of Rare Disease Research (https://rarediseases.info.nih.gov)
- NYC Public Advocate Office, Jumaane Williams (https://advocate.nyc.gov/about/the-public-advocate)
- Rare Diseases (www.rarediseases.org)
- Youth Adult Representatives for Rare Disease (YARR) https://everylifefoundation.org/young-adult-representatives/
- National Institute of Health/National Heart Lung Blood Institute (NIH/NHLBI)
Information and resources for inherited blood disorders and other rare diseases.