Sickle Cell is a Human Condition
Sickle cell disease (SCD) is often defined as a “Black” disease. Although it affects people of African descent predominantly, SCD is not exclusive to Africans and Black Americans. Sickle cell disease is indigenous to Southern China, Southeast Asia, the Mediterranean, Middle East, India, Central and South America.
About SCTPN
Sickle Cell/Thalassemia Patients Network (SCTPN) began in 1989 at Brooklyn Jewish Hospital (now known as Interfaith Medical Center) located in Brooklyn, NY,as an adult and parent support group for individuals with inherited blood disorders.Sickle Cell Thalassemia Patients Network (SCTPN) was incorporated in 1993 as a volunteer, not-for-profit organization by its founding members (adults living with sickle cell disease, thalassemia and other hemoglobin disorders) to serve the larger community by providing a face and a voice for these under represented health issues.
MISSION
Improve the quality of life for individuals and families living with inherited blood disorders
SCTPN accomplishes its mission through the delivery of education, advocacy, care coordination, support interactions, and referral to services. The commitment is to diminish the negative physical, psychosocial, academic, economic, and political impact sickle cell disease and thalassemia have on families and entire communities.
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VISION
Horizon Unlimited: SCTPN’s Vision for Boundaryless Wellness.
Embarking on a journey of expansion, to raise the profile of sickle cell disease and thalassemia internationally and participate in efforts to find effective treatments until compassionate universal cures for hemoglobin disorders are accessible globally.
SCTPN sees a world united against the continued transmission of Sickle Cell Disease and Thalassemia, where the sun never sets on progress. From our humble beginnings in Brooklyn, NY, we dream of a reality where geographic constraints are erased by the power of knowledge-sharing, innovation, and compassionate outreach. With a steadfast commitment to transforming lives, we aim to reach, empower, and uplift those affected across continents, fueled by the shared purpose of building a future where these conditions are but a memory. By weaving together the threads of knowledge, advocacy, and empathy, we aspire to foster a global network that brings hope, care, and a brighter tomorrow to every affected individual.
What is sickle cell ?
Sickle Cell Disease is a genetically inherited blood disorder prevalent among people of African, Caribbean, Central/South American, East Indian, Middle Eastern, Mediterranean, Asian and Southeast Asian ancestry.
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What is thalassemia ?
Thalassemia, like sickle Cell, is characterized as a group of abnormal hemoglobin variants. The two most common types of thalassemia are Alpha Thalassemia (Cooley’s Anemia), beta (β) thalassemia.
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What is a rare disorders ?
In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was created by Congress in the Orphan Drug Act of 1983.
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We can help you
If your or someone you know is living with sickle cell diseases and needs help, contact our office to speak with a Community Health Worker (CHW)
Become a Advisor or Volunteer
SgoalsCTPN offers a variety of ways for you to support its mission and assist with the achievement of its annual
Our plate is full so we are making our plate bigger
If your or someone you know is living with sickle cell diseases and needs help, contact our office to speak with a Community Health Worker (CHW)
